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Victorian Prader-Willi Syndrome Register


The Royal Children’s Hospital maintains a Victorian Prader-Willi Syndrome register which collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.

To register your interest please complete the consent form: Please note you do not need to be a member of the PWSA Victoria to participate.


Consent Form
Please note you do not need to be a member of the PWSA Victoria to participate
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Click here to view or right click (Mac - control click) to download the form







 

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The PWSA of Victoria Web Site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor. The inclusion of any resource or link in the PWSA of Victoria Web Site does not imply endorsement.    
info@pws.asn.au