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Royal Children’s Hospital Clinics The Royal Children’s Hospital run a PWS clinic four times each year, for infants and school aged children. At the clinic there are Paediatricians, Dietician and Endocrinologists available by appointment. A referral is required to attend the clinic. For further information contact the RCH Outpatient department on 03 9345 6180.

Prader-Willi Syndrome Register The Royal Children’s Hospital maintain a Victorian Prader-Willi Register which collects basic information about Individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioral effects of this condition on the individual and their families. The information will contribute to learning more about PWS in Australia and worldwide. To register your interest contact RCH on 03 9345 4562.

Professional Development Training
Training and education about PWS and how to manage it can be arranged by our In-Sevices Training Manager. Contact to organise a time and visit.

Medical Information for PWS:
A list every parent, and their doctor, should have.
USA - click here
UK - click here

Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings - 2015
click here

A guide for the General Physician (GP) and for parents and care providers of children and adults with Prader-Willi syndrome visiting the GP
click here

PWS International Conferences for Professional Providers and Caregivers
click here

Autistic Spectrum in PWS
click here

Residential Best Practice Guidelines and Standards of Care
click here

Health Supervision for Children with Prader-Willi Syndrome
click here

Sexual Development
click here

The PWSA of Victoria Web Site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor. The inclusion of any resource or link in the PWSA of Victoria Web Site does not imply endorsement.