PHONE   0451 797 284
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The Prader-Willi Syndrome Association of Victoria Inc. was set up in 1978 by parents of children affected by the syndrome and is totally run by volunteers. It has a long experience of providing help and information. Our membership focuses on Victoria and Tasmania although anyone is welcome to join. Our members include parents and carers, family members, people with PWS, professionals and interested supporters.
Membership Details, Newsletters Membership of the Victorian Association is free and it also gives you membership of the Prader-Willi Association of Australia. Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

In Service Training The Association offers access to in-service training and visits to creches, schools, kindergartens, work places and adult centres within Victoria and Tasmania.

Parent/Carer Support For queries or assistance required by Parents or Carers of a person with PWS, please contact PWSA Victoria on 0451 797 284 or

Conferences/Information Sessions and Family Days Invitations to social events including the Asia Pacific Conference and International PWS Conference. The PWSA Victorian Association run two General Meetings per year, whereby guest speakers are invited to talk with our families. We also arrange an Annual Family Information Day and Annual General Meeting to keep families updated of latest information in Victoria.

PlayGroups Play groups for preschool age children

Sally Smith Award The Sally Smith Award is presented in honour of Sally Smith who was a committee member of the PWSA Victoria for 32 years. During this time, Sally assisted many PWS families by educating them and their extended families about PWS and strategies on how to prepare and deal with the syndrome. Sally also spent time educating many schools, respite service providers and organisations across Australia about PWS and how to help the PWS person out of a crisis and stressful situation.

The award will be given to a person in recognition of outstanding effort in promoting the education, awareness, well-being and welfare of people with Prader-Willi Syndrome and will be presented each year, at the Annual General Meeting of Prader-Willi Syndrome Association of Victoria.

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Membership Forms
Membership to the Prader-Willi Syndrome Association of Victoria (PWSA Vic) is free and provides access to some wonderful benefits.

PWSA Vic offers 5 types of Membership:
  • Friends of the Association
    - Person with PWS who wish to join as an individual and personally receive up to date information on events and news.
  • PWS Family - Parents/Carers, Child with PWS and their Siblings.
  • Extended Family and Friends - Relatives such as Grandparents, Aunt Uncles, Siblings with children of their own and any friends who wish to show their support to the family by becoming a member of the PWSA Vic.
  • Professionals and Professional Organisations - who wish to support the PWSA Vic and be kept up to date regarding workshops, training opportunities, events and news.
  • Supporters of PWS and PWSA Vic - Anyone wishing to lend their voice and show their support of PWS and the PWSA Vic Community.

  • Click here to complete a secure online form

    The PWSA of Victoria Web Site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor. The inclusion of any resource or link in the PWSA of Victoria Web Site does not imply endorsement.