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Links

 
Here are links to websites that we have found to be useful. Some are specific to Prader-Willi Syndrome, some are great for researching the condition and others are sites that you will find of interest.

International PWS Associations IPWSO (International Prader-Willi Syndrome Organisation): www.ipwso.org

Argentina:
www.praderwilliARG.com.ar

Austria:
www.prader-willi-syndrom.at/

Canada:
www.fpwr.ca

Chile: www.prader-willi.cl

Denmark: www.prader-willi.dk

Finland: www.pws-yhdistys.fi/

France: www.prader-willi.fr/

Germany: www.Prader-Willi.de

Israel: www.pwsil.org.il

Italy: www.praderwilli.it

Japan: www.pwsa-japan.org

Korea: www.pwsakorea.org

Netherlands:
www.praderwillisyndroom.nl

New Zealand: www.pwsa.org.nz

Norway: www.praderwilli.no

Poland: www.prader-willi.pl

Romania: www.apwromania.ro

Slovakia: www.pwsyndrom.sk

South Africa: www.praderwilli.org.za

Spain: www.prader-willi-esp.com/

Sweden: www.prader-willi.se

Switzerland: www.Prader-Willi.ch

Taiwan: www.pwsa.org.tw

United Kingdom:
www.pwsa.co.uk

USA: www.pwsausa.org
Hospital/MedicalRoyal Children's Hospital: click here

Government Centrelink: Payments and services if you are caring for someone with a disability click here

Department of Human Services - Disability Services:
Financial assistance, accommodation options, community involvement and other supports and services for people with a disability, their families and carers click here

Department of Education: Assistance with kindergarten, schooling and integration.
Pre-school click here
School students with disabilities: click here

Commonwealth Department of Health and Family Services: Assistance for carers and disabled people click here

Support Association for Children with a Disability: click here

Interchange: click here

Carers Association: click here

SPELD Specific Learning Difficulties Association of Victoria: click here

GeneticsMurdoch Institute: click here

NSW Genetics Education Program: click here

Genetic Support Network of Victoria: click here

ResearchPrader-Willi Research Foundation of Australia: click here

Foundation for Prader-Willi Research: click here

PubMed, a service of the National Library of Medicine:
click here

Facebook Exchange of Information GroupsPWS Recipe Exchange: click here

PWS Exercise Exchange:
click here

Australian Associations
There are four incorporated State Associations in Australia - Victoria, NSW, Western Australia and Queensland. Membership of any of these State Associations gives members automatic membership of the Prader-Willi Syndrome Association of Australia.

Listed below are contacts for each State Association.

PWSA of Victoria
The Secretary
Prader-Willi Syndrome Association of Victoria  
PO Box 92 Kew 3101 Australia 
Phone: 0451 797 284
Overseas: 61 451 797 284
email: info@pws.asn.au

PWSA of New South Wales
Website: www.pwsnsw.org.au
email: nsw@pws.org.au

PWSA of Queensland
The Secretary
Prader-Willi Syndrome Association of Queensland
PO Box 8295, Woolloongabba QLD 4102
email: pwsaqld@yahoo.com.au
facebook: click here

PWSA of Western Australia
PO Box 7151 Safety Bay
Western Australia 6169 Australia
Telephone: 0439 436 344 Overseas: 61 439 436 344
email: rogers@iinet.net.au

PWSA of Australia
Email

IPWSO Australian Representatives
Professional Delegate:
Assoc Prof Ellie Smith
Email: ellies@chw.edu.au

Parent Delegate:
Katie Albanis
Email: katie@myaccess.com.au


 
contact
       
The PWSA of Victoria Web Site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor. The inclusion of any resource or link in the PWSA of Victoria Web Site does not imply endorsement.    
info@pws.asn.au